Friday, September 11, 2009

9/11

Tonight I'm remembering another whose life ended too soon...not as a baby, but too soon nonetheless. Tonight I'm remembering Maile Rachel Hale, lost in the World Trade Center on 9/11/01, at the age of 26. She was a sweet, inquisitive, lovely woman and a good friend. We met during a semester-long maritime studies program in college. She loved the ocean, Hawaii (where she grew up), her family and friends, and chocolate. Although she majored in chemistry, she won an award for a history paper she wrote during our semester, and I admired that. In 2001, she was living in Boston, but just happened to be attending a conference at the World Trade Center that September day.

I've learned a lot about Maile since she died, remembering her with others and hearing their stories of her. She wasn't my closest friend from that semester - we were all close, in the way of people who share an experience that can't be explained without having been lived - but our friendship was certainly still evolving when she died. And that's what breaks my heart the most - the lost future. That's what we mourn when lives end too soon. Her future, and our future together, as friends, continuing to learn about each other and watch each other's lives unfold. I wrote something to that effect in the guest book at her memorial service, and it's even more obvious to me now after losing Sierra. The 9/11 anniversary has been particularly hard this year.

I miss you, Maile. I wish you were still here; I know you would have done great things on this earth. I wish you could see me now, still working with the ugly fish you liked to tease me about. I wish you could know that the boyfriend you approved of is now my husband and see our children. Maybe you do know. Maybe right now you are holding Sierra, both of you whole and happy and hoping that I am remembering you with smiles as well as tears. I hope that you are, and I do cherish the happy memories.

Maile's memorial service ended with Dar Williams' song "Better Things." Here's a bit of it:

Here's wishing you the bluest sky
And hoping something better comes tomorrow
Hoping all the verses rhyme,
And the very best of choruses to
Follow all the doubt and sadness
I know that better things are on their way.

Here's hoping that the days ahead
Won't be as bitter as the ones behind you
Be an optimist instead,
And somehow happiness will find you.
Forget what happened yesterday,
I know that better things are on their way.

Thursday, September 10, 2009

September

The seasons are very definitely changing here. Sometimes the transition from summer to fall is a subtle one. This year it seems to have happened overnight. Suddenly the air is much cooler, the humidity and mosquitos are gone, and the leaves are already starting to turn. And the calendar says September. Already? How did that happen?

This is a month of contrasts for me...It started with the shockwave through the whole babylost blogging community of the loss of sweet little Jet. That one I didn't even see coming. Next we have September 11. My world was turned completely upside down on 9/11/01...and I'll say more about that tomorrow. Then September 14, Austin's third birthday and our seventh wedding anniversary. Austin is old enough to anticipate his birthday with excitement this year. September 15, one of my closest friends is moving halfway across the country. She has been one of my lifelines this summer, going to lunch with me once a week, letting me talk about Sierra as much as I want, crying with me, saying all the right things, just the best. We'll still talk on the phone, of course, but it just isn't the same. On September 26 I have a reunion for a program I did in college; the people I met there are still some of my closest college friends. I'm really looking forward to seeing them, but if Sierra were still alive I wouldn't be going. And that brings us right up to September 27.

September 27 was Sierra's due date. Strangely enough, it was also Austin's, and I just can't stop thinking about the difference between this time in 2006 and now. How full and happy I was then, how empty and sad now. I should be just about to have a baby, getting ready for her to be here, for everything to change. Instead, I plod along, struggling to understand that nothing is changing, that she is gone and always will be. I feel burned out at work; I should be just about to start maternity leave, but instead I'm working through endless piles of the same kinds of data. All around me people are going back to school, starting new jobs, making changes and I'm just...stuck. Stuck longing for a baby I will never hold again. I miss you so much, baby girl. I just can't move past this right now - how much I miss her, how she should be in my belly, about to be born. I have no pregnant belly, no baby, and it's just so wrong.

Sierra was born on July 3rd - high summer here. We spent all of June worrying about her, all of July and August mourning her. I thought summer was her season, and it is, but the start of fall is hitting me hard. This should have been the season of her birth, the season of bonding with her outside of the womb. I guess if summer is her season; fall is her "should have been" season.

This sounds so scattered...and I really can't come up with any way to make this anything larger or deeper than simply a lament that she isn't here with me. But I'm going to let it stand, because this is where I find myself right now.

Tuesday, August 11, 2009

Sierra's story, part 1 - the beginning of the end

At the end of the last post, I set myself up to tell Sierra's birth story...but I have to start farther back in time than that. The story begins with an ultrasound - a normal ultrasound showing a healthy baby (or so I thought). At 17 weeks and 4 days, we went for the "big" ultrasound. Everything looked good, the baby was measuring just right for gestational age, and we made the happy discovery that Austin's prediction that he was getting a little sister was accurate!

This ultrasound had been scheduled a bit earlier than the typical 18 to 20 weeks because we were planning another one to look at the heart in detail at 22 weeks - a fetal echocardiogram - and my midwife knew I wanted to try to minimize the little one's ultrasound exposure, or at least spread it out over time. The echocardiogram was because my husband's brother died of a heart condition no one knew he had, there was a (fairly small) chance it was genetic, and we (my husband especially) needed the reassurance that the baby's heart was okay.

The day after the 17 week ultrasound, I got the results of my AFP test and learned the AFP was elevated. This had happened with Austin, too, and he is fine, and besides, we just had an ultrasound the day before that turned up no red flags. So I wasn't very worried. Elevated AFP is a marker for open neural tube problems and the doctor had looked carefully at the baby's skull and vertebrae during the ultrasound.

However, when we went back for the next ultrasound, at 22 weeks and 4 days, I mentioned the AFP test and the sonographer assured me that she would check the baby's spine again. I relaxed, still not concerned and looking forward to seeing my baby again. She squirted the gel on my belly, began moving the transducer around, then asked casually, "Do you think you've been leaking fluid at all?" Ummm...I don't know. Maybe a little. There were actually a couple of times I'd wondered about that, but I never needed pads or was aware of any gushes of fluid...Why? I asked her, is it low? "Yes, quite low." Oh. I still wasn't that worried. She looked around a bit more, then went to get the doctor. When she left, I looked over at my husband. The concern in his eyes made me wonder if I should worry, too. He asked me what the low fluid meant and I said I didn't know. The doctor came in then and started looking and taking measurements. The sonographer, understanding something we didn't yet, took the somewhat antsy Austin out of the room in search of stickers, crayons, and paper. The doctor then said, "I do see two things that concern me..." Two? "The fluid is very low and the baby hasn't grown the way we would expect. She looks normal and healthy, but is likely not getting what she needs to grow and produce urine." Amniotic fluid at this stage is mostly baby pee. Turns out elevated AFP can also be a marker of placental problems and everything was pointing that way.

Austin came back into the room about then, with his art supplies, and the rest of the conversation was punctuated by him applying stickers to my shirt and my bare belly. The doctor talked of the baby's increasing demand on the placenta, then said if the baby could make it to 25 or 26 weeks it would probably be best to deliver her at that point. Until then, all we could really do was watch and wait and have ultrasounds weekly (so much for minimizing exposure...). As dire as this sounded, I still clung to optimism. She didn't say the baby would necessarily die, just that she would probably have to be born very early. It seems a bit ridiculous to me now, that I was still as hopeful as I was at this point, but when it is your baby, you hold tight to any bit of hope.

The next week I had a visit with a midwife and a follow-up ultrasound at the midwives' office. Still no change in the fluid. The midwife was honest about her concerns and told me as gently as she could that this situation was usually "ominous" and I should see a maternal-fetal medicine specialist at another hospital - in fact, I should probably transfer my care to them, to this larger hospital that had the NICU that my baby would require, should we decide to deliver her. The midwife then looked at me and said she wanted to give me a hug but maybe I didn't want her to upset the control I was (barely) holding onto. I decided I wanted the hug anyway. I can't stand the thought of losing this one too, I told her through the tears. My last pregnancy was a loss and now this... "I know," she said, her hand still on my shoulder and sadness in her eyes. "We just have to hope this little one can hang in there long enough."

Monday, August 10, 2009

An introduction, of sorts

I am a mother. Whether of one or two or three is in the eye of the beholder, I suppose. This much I know: I've held three in my womb, and hold three in my heart. I've given birth to two, and hold just one in my arms now, just one who walks this earth beside me.

* * *

My first pregnancy brought me a sweet baby boy, now a lovely, boisterous, almost-3-year-old. My last two pregnancies combined have totalled 40 weeks - but haven't resulted in a baby I can bring home. One ended at 13 weeks, the other at 27 weeks and 5 days. The latter ended just over five weeks ago - she should still be in my belly. Most mornings I stand in the shower and think, "only me in here," looking down at my slack, empty, slowly flattening belly.

I miss her so much, my little Sierra girl. Two weeks ago we camped on the beach, a couple hours from home. I wrote her name in the sand and watched the waves erase it almost immediately. I wrote it again, then walked away from it as her big brother Austin ran playfully ahead. It felt a bit like birthing her lifeless body, then leaving her at the hospital...